Resources

This is a great resource to research many diseases and new treatments. As on of the premier research clinics in the United States, they have been researching ADEM, MS, and NMO for decades. They have been able to learn so much and make that information publicly available so that those afflicted by such diseases are able to learn and understand what they are diagnosed with.

This is a great place for anyone that has experienced an event that has limited their mobility. The staff is extremely helpful not only with physical rehabilitation but also occupational and speech therapy. With beautiful grounds and top of the line facilities their program has been one of the best facilities for over 100 years. Our personal experience there has led us to appreciate their high standards for care and therapy. 

This is a website that can help with finding information on rare neuroimmune diseases like MS, ADEM, NMO and other rare diseases and possible clinical trials. This is amazing as it is also a forum where many doctors within the field that have lots of information to offer. They hold many informational forums that can be a way for individuals to learn from top people in the field that explain a lot off complex problems in a way that is easy to digest.

This is a clinic that focuses on a lot of rare diseases as the medical field is constantly changing since the are 1920’s. They have a wide range of specialties that can help explain medical events and can collaborate across multiple fields that can help flesh out how a disease effects the whole body. There are multiple specific resources on ADEM, MS and NMO that we have found extremely illuminating and we have found to be helpful in explaining to others our case.

Johns Hopkins University is a great medical institute that forwards the field not only in care but also in treatment for people with rare diseases of all ages. Their collaborative work has lead to many improvements across medicine and treatment that have saved coutless lives and improved the lives of so any more.